~~Pray for Julian~~ Please vote popular to get a prayer chain going...

[Mommy-2-Jabe06]

First I want to say that this post is so hard for me to write. It make smy heart hurt and ache for my friend and her family.



My long time friend Shorty, I have known her for well over 15 years. She has twins Briana and Julian, they are 6 years old. She also has Gabriel also knows as Beaner!! Well, last October Shorty sister passed away suddenly in her sleep. They said it was a massive heart attack, she was only 30 years old. She was also a wife and a mother to 3 small little boys.



A month after Shorty's sister passed, Julian, Shorty's twin boy, started to have really bad dizzy spells. He couldnt keep food down, and was going to the bathroom on himself. She thought it was a side effect of some antibiotics he was taking, but when he stopped taking the meds, the symptoms where still there.. So she took him to the emergency room. The did all kinds of testing and couldnt find anything wrong. They did a cat scan as a last resort. The found a cancerous tumor on his brain stem. That was in operable. He was immediatly sent to St. Jude to recieve treatment. Shorty was told that the they couldnt operate on the tumor because of its location in his brain stem. They also told her that this tumor is fatal and gave Julian 12-14 months to live. Julian recieved experimental radiation on his tumor and was only able to recieve 3/4 of the chemo as it made his blood pressure drop way down. He was put on high doses of steriods to hold of the massive symptoms he was having, When she left for St Jude the first time Julian was in a wheel chair and couldnt walk. When he came back from St Jude after 6 weeks of treatment he was walking and playing just like a normal 6 year old boy. It was amazing. The tumor had shrunk and Julian had gained about 30 pounds from the huge amounts of steroids. The doctors where still very unsure about the tumor and could not make any promises. It was basically wait and see time.



Julian came home and we have had a few fund raisers to try and raise money for his family. His mother cant work because she is constantly taking him to the doctor.



In the past 3 weeks Julians symptoms have came back. Even worse than before. His mother, who is an amazing and strong woman, knew that something wasnt right. She took him back to the doctor where the did another MRI. The tumor is back, all the pieces that died from the radiation have came back even larger and stronger than before. He was put back on steriods and was sent back to St Jude on Saturday. She also had to dis enroll him from school because she wants to be with him as much as she can. We got her in contact with Make a Wish. And they are doing something amazing for the family. Julian and his whole family get to go to Disney world for 7 days and 6 nights. All expenses paid and with $1000 spending money. How amazing is that!!



Julian just came back today from St jude. The news is not good. He has to come back to St Jude the day after we have him baptised for a treatment that hasnt been done on anyone else before. His mom Shorty said lets just stay and start the treatment now, the doctors refused. They want Julian to go to Disney and have a good time, since they know Julian doesnt have much time left. His baptism is May 2nd.



My heart aches for Shorty and Julian. How can something so horrible happen to such a sweet and innocent little boy. Julian is so amazing. He makes a room light up when he walks in. Hes absolutly beautiful jsut like his mommy. How does one process something like this? How can this happen?



Just please, go hug your kids, tell them you love them, cherish them every second of everyday. Because everyday is a gift from God and our children are really a precious thing.



Please. Please. Please. Say a short prayer for Julian. I have posted this on myspace and facebook. I want as many people as possible to pray for Shorty and her family. i want to copy and send her all of the well wishes and prayers so she knows that she is not alone is this HORRIBLE time.



Please mark this as popular so I can get a lot of people to pray for them..



There is also a website where you can donate for Julian and his family. I will add that to this later..



**UPDATE**

Seems to me that alot of people are reading this and not commenting.. that is really upsetting. Though I look around at the other journels and I see a bunch of responses about saving an elephant.. makes me very pissed off.. Obviously we care more about an elephant than we do a child.

[99bottles]

Apr. 22, 2009 at 12:07 PM

[amj616]

Apr. 22, 2009 at 12:12 PM

It makes me really sad to hear this. I will be praying for Julian and his family.. That is very sweet that the Make a wish foundation did such a great thing for them. I really hope that the treatment that they want to do that has not been done on anyone before is just what he needs. 

[duncanclan1996]

Apr. 22, 2009 at 3:46 PM

I  am praying for this family. May god watch over them.

[we2angels]

Apr. 22, 2009 at 4:03 PM

I don't' know why people read, don't comment but bump up.  I can't imagine her pain, please know she's in my prayers as well as sweet Julian.  Please tell her not to hesitate to use hospice services if it does come to a time to discontinue treatments (I hope that doesn't happen) or after for grief services.

However, I've heard of miracles and that is what I'm praying for.  No mother should have to ever bury her child.

[princessnyprnc1]

Apr. 22, 2009 at 5:14 PM

I can't imagine her pain. I am putting Julian on a prayer list at church. I am going to email the pastor shortly. The values people have these days also amaze me <eyeroll>. Hugs to everyone involved with this little boy.

[zoeycolesmommy]

Apr. 22, 2009 at 8:09 PM

I will keep the family in my thoughts and prayers!

 

 

[newmom2009]

Apr. 22, 2009 at 8:32 PM

i am crying as i write this. my son is 3 months old and the light of my life. i cant imagine losing him at such a young age or ever for that matter. this little boy is in my prayers and i hope for the best. 

the only thing i csn think of why people arent commenting is they dont know what to say. nothing anybody says is going to mske things better and people are afraid to say the wrong things in times like this. when my brother committed suicide a year and a half ago we were all heartbroken and everyone tried to be there for us but nothing they said changed what happened.  they meant well but soetimes they just didnt know what to say.

heres to julian and his family, may god shine his mercy on them

[stacy8606]

Apr. 22, 2009 at 8:35 PM

[souldolphin]

Apr. 22, 2009 at 9:33 PM

I will keep this family in my prayers!!!!!!!!

[rachel4398]

Apr. 22, 2009 at 11:42 PM

I will pray for this family ...