The other post was really long. So I am starting a new update one.
::Update April 22nd::
I know NICU is a rollar coaster and since my last update we have hit bottom and top all in 12 hours.
We got a call 1:30am that little Austin didn't make it. His heart collapsed around 1am. They came and woke her up to tell her. She is very upset. She called us right after and cried to my sister for about an hour.
She was up all night and finally fell asleep around 9am after being told that her mom got ahold of the dad (the babies dad) HE IS FLYING OUT HERE! But the mom won't tell her when. It will be tonight or tomorrow. He never knew that there was more than 1 baby. He was crying on the phone he found out about the babies after Austin was sent to live with god.
Her mom left the hospital and as she was just getting off the phone with my sister a nurse was getting her ready to go and see the babies. She was told (as of right now 12:26 pm pacific time) that the survival chances have gone up!
This is very good news, and I'm glad things are looking a little better.
Chances are at...Leanne and Dalas are at 45% survival chance (yesterday Leanne was 20 and Dalas was 40) and Marie the one that no one knew about is at 65% (yesterday was 40).
God works miricals in weird ways. Thanks for the prayers from everyone.
Also...to answer questions we live in West Phoenix, we live in Avondale. I'm not allowed to say what hospital she is at. If you are to ask for her they are not allowed to say (her mom had it set up this way and the only way me and my sister are allowed to visit is to keep it hush. She does not want the other family members to find out and give her more grief in this stressful time)
They will be at Phoenix Children's by this weekend. They are at the same hospital that they were born at for now because that is where the mom is at. They have everything set up at the children's hosptial already though.
I will try to give another update tonight.
::UPDATE April 25th::
I don't honestly have all the answers for the replies in the post. I agree they should have been transferred sooner, I'm guessing they weren't because there was a NICU at the hospital she delivered at...I really have no clue.
I have been out of town so here is the update from the past couple days.
Leanne Thursday night started having breathing trouble. They put a tube down her throat, right in front of her mom freaking out her mother. They kept her like that Thursday night and Friday morning Leanne was transferred to the Children's hopsital (I am not sure if the others are there yet or not but she is defiantly there)
I know Lisa (the mom) is still in the hospital.
Around 6pm Thursday night the father showed up! Her (the babies mom) mom flew him out here. I'm not sure if it is temporary or permanant. I know they are looking for a bigger house...
Basically things have been the same since that. Leanne's health is suffering right now, but the other 2 babies are doing ok.
As of right now (my update from about 15 minutes ago) it is as this.
Leanne has a tube down her throat because of her breathing. They are suctioning out her lungs every hour. They did a sonogram on her lungs yesterday. They have put her into a deep sleep. And she is at 10% survival right now.
Dalas...I'm not sure how his oxygen is they didn't tell me...he is stable and is at 50% chance survival right now.
Marie...she only has oxygen through her nose. (my sisters words) she is doing the best out of the 3. She is at 60% chance of survival right now.
That is all that I know. Please pray that Leanne makes it through and her percentage gets higher.
Comments:
I am so sorry about austin. It so sad. But as a pervious mom said he is with god. I am glad the babies father is able to come out. Thank you for the update and she and her little ones are in my prayers.
What in the world is that hospital staff thinking? I am floored that they wouldn't have immediately transferred those babies to the children's hospital as soon as they were born, regardless of where the mother is. If they need the care available at the children's hospital, that medical staff should have not delayed.
And why in the world would a doctor actually think he could perform open heart surgery on a 24 week old baby?!?!?! At that age their skin tears like tissue paper, how could he expect a child that fraile to realistically survive a surgery like that? Not to mention the doctor should have known that holes in hearts are VERY common in preemies and many close on their own over time, without needing surgery. And if the surgery was performed somewhere other than the children's hospital, then the medical staff wouldn't have had all the resources available to save that little boy's life. It sounds like your friend needs to talk to a lawyer ASAP about filing a lawsuit of malpractice against that hospital.
I just now found this update...i've been trying to follow how mom and babies are doing...
i agree with some of the points that rebabeach2 brought up...but i would find out exactly why they decided for a surgery at that hospital before any lawsuits...yes, babies can have holes that heal up after birth, but those are usually term or close to term babies, and the reason for having the emergency surgery may have been for a hole that was not in a 'normal' baby spot...just my thinking...
i am sorry that one didn't make it....and i'm sending good vibes in her and the babies' direction...i'm hopeful for a quick recovery for mom and a healthy recovery for babies(as long as it takes)
So have the babies been transferred to the Children's Hospital yet?
Speaking as a mom to two preemies, I just want to let mamadragon know that the ability to operate on a mirco-preemie is very limited. Their skin can literally be torn just from some of the medical tape used to secure breathing tubes. Putting sutures in a child this undeveloped is liking trying to sew two pieces of tissue paper together with barbed wire. Did the mother even sign consent for the surgery?
Even if the hole is in an "abnormal" place, the risk of death is far greater (as is the pain and suffering) in undergoing surgery than waiting it out. Plus, when these babies have between a 10-60% survival rate to begin with, I can't imagine that little boy having much hope of surviving heart surgery. Unless there is a major misunderstanding between the mother and the OP, this is a HUGE case of medical malpractice. It sounds very similar to a case here in my area a little over a year ago and I am VERY interested to hear how this is handled.
Um, OP I just noticed that you have a couple group posts dated April 21st that are titled, "Leanne RIP" but this most recent update is from the 25th and says Leanne is still alive. What gives? Why are you posting that the baby died a week ago in other groups?
ok, iam so sorry ihave now read them all, that is sad and i know its been a few months but i am just now readiing it all, i guess last time i cam on here this part of ur page wasnt there. But like i said in the last post iam praying for her and the two babies. And hope that the rest of her family supports her again.
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im sorry to hear about austin. he is in gods arms now. tell your friend that her and her babies are still in my prayers and that i wish her the best of luck.
- mamasbabi3176
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