Well Evelyn's MRI came back normal so that rules out anything neurologically. Now we just wait for all the blood and urine tests to come back.We should get them on the 24th when we take her back to Salt Lake to se the specialist and primary childrens. Her hypotonia is getting worse so she has been referred to a physical therapist, and she is constantly congested so she is also being referred to an ENT. Which brings the total number of dr's involved up to 7, we go to 1-4 appointments a week it is starting to get just a little overwhelming :(. At this point we really just want some answers so we can know what to do to help her! The good news is she is very alert and responsive and not showing any mental delays as of yet, although phyiscally she is showing some dysmorphic features around her nose mouth and forehead.


Anyway I just want to thank you all for keeping us in your prayers. This whole thing has us stressed to the max emotionallyt physically and financially. Its great to know there is an entire network of people out there supporting us. Thank you ladies!!

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Comments:

AHJN
Aug. 14, 2009 at 7:18 PM

Oh my, you certainly have your hands full.  I will continue to keep all of you in my thoughts.  You are one strong woman to be handling all of this.

*hugs*

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