Jadzia's kidney isn't growing:(

[Beyondthesky37]

Jadzia had her follow-up kidney appointment today.   Back in January we discovered Jadzia had a small kidney.  The doctor decided to watch it and told me one of three things would happen.  It would continue to remain small but still grow, it would stop growing or it would shrink.  We found out today it is not growing.  She has to have a catheter test to determine if she is having bladder reflux if this is the case she will have to either stay on antibiotics everyday for a year and then re-evaluate or she will have to have surgery to fix the problem permanently. 

The second step is to look for scarring of the kidney he told me he wasn't going to tell me what the option to fix that was yet so I suppose it's not good.  The next one is maybe a clot by the kidney either now or in the past.  He says that one is unlikely because she hasn't had any problems with her blood pressure which she should have if that was the problem. 

Also he noticed that she had a sinus infection and he said didn't she have one the last few times she was here.  I told him yes, she gets them about every other week.  The adenoids were supposed to take care of it but didn't.  He wanted me to have her immunoglobins checked again and also see if she may have polyps in her sinuses so it's back to the ENT. 

He thinks that the doctors are still missing the bigger picture and there is something bigger going on.  This is discouraging because she was doing so well.  We helped her lot by removing lactose from her diet, removing the tonsils and adenoids and getting her on reflux medicine but apparently it wasn't enough.  I really don't want to go down this road with her again.  I'm worried about how these test will affect her emotionally.  Last time she pulled all her hair out and I'm scared she'll start again. Please pray they'll get to the bottom of what's going on finally.  My baby needs to be a little girl not going through tests and doctors appointments!

[mommypip]

Aug. 26, 2009 at 9:55 PM

Wow, I hope they figure out what's happening soon. It sounds like you have a lot on your plate. I wish you well and hope things improve for your little one.

[kirasmommy7]

Aug. 26, 2009 at 10:33 PM

Aww poor baby girl! She has had the worst last year ever. I hope they figure it all out. She shouldnt have to go through all of this! Im here for ya, if you need anyone to talk to. I'll be praying for her.

[ladyhazel77]

Aug. 27, 2009 at 12:40 AM

I am so sorry all these things keep happening to you and your family.  It just doesn't seem fair.  You just seem to have so much on your plate.  I will continue to think of and pray for your family.  I'm sorry I didn't write back to you and I am glad to see you are still here on Cafemom.

~Hugs~

[swtjeri]

Oct. 1, 2009 at 7:42 PM

we are still praying for yall.  wish i could give you a big hug

[jacksmom21]

Nov. 22, 2009 at 10:28 PM

how is she doing now?  i hope and pray things are better!