Maddie's Heart

[theatregirl26]

Our beautiful baby girl has some issues.  We went to the doctor on Friday to find a very pronounced heart murmur.  We went to the heart doctor today.  They found that her PDA did not close up.  The PDA is a artery that goes to the cord while in the womb.  This normally closes after the baby is born.  Well, it didn't.  It is causing the left side of her heart to work extra hard.  That is why we never saw any issues.  She acts totally normal.  Well, 10 years ago this would have been open heart sugery.  It isn't like that now.  They will go through an artery in the leg, place the plug, and it will be over.  They will relax her so she will sleep and in they will go.

 

She also had a problem with her left aortic valve.  It is supposed to have 3 doors and it actully has 2.  These doors keeps the blood from coming back in.  Well, she has a small leak.  Nothing to worry about, but will need to be watched.  These doors have to work harder because of this so there is a chance of those doors thickening.  If that happens, there will be other things to worry about.  These doors can thicken during growth periods and after the age of 40 (from age).  The first growth period she came out fine.  We will just have to check it yearly.

 

I am waiting to hear from Childrens Hospital to see when a good time will be to get this done.  As soon as I know, I will post something.  Please keep Maddie is your thoughts and prayers!!

 

BTW, she was perfect and I mean PERFECT through all the tests and doctors today.  I could not have asked for a better child.  I am SO SO PROUD  of her. We both are!!  We talked about in on Sunday night.  About how the heart works.  She listened to our hearts and to hers and thought it was great.  Then we talked about her actually seeing it beat on TV!  She thought that was a great idea.  We talked about the gell and that it was like soap and that it wouldn't hurt and that I had it done.  We also talked about it being like when we saw Timmy in my tummy.  She did great. Even excited.  I am so proud of her!!

I still have not heard back from the doctor.  Still waiting.

Posted this on our Family website.  http://ourbeautifulchildren.shutterfly.com/416

[wilesmomma]

Sep. 29, 2009 at 11:18 AM

I still have her my in prayers!

[Kidnurse1963]

Sep. 30, 2009 at 1:26 PM

Hi Jen,  I will keep Maddie in my prayers.  Both of your kids are beautiful.  My daughter goes to St Louis Children's Department of cardiology and they are fantastic.  My daughter has the same problem with missing the extra flap of the valve.  But we are just watching it.  She was one of my patients and I adopted her.  She has a really rare syndrome called Cornelia de Lange syndrome.  She was born without her forearms or hands.  But she was blessed with one thumb right at the elbow.  She's also very tiny only 36 pounds.  And she is 10 years old.  I love her very much.  Which cardiologist do you see at Children's Hospital?  We go to Dr. Angela Sharkey.  It is a fantastic hospital.  My daughter see's several specialists there and she's been in the hospital many times.  They have always been sooooooo good to her.  I used  to work in the intensive care unit.  I could go on and on about the great care we've received there.  I will keep you and your family in my thoughts and prayers.  IIt's really great to meet you.  take care.  Terri