If you could only imagine..

[Cymbeline]

Imagine having a new baby girl, who is born appearing perfectly healthy. She learns to talk, smile, play with her toys, hold her cup, and possibly walk.

She is beautiful, vibrant, and full of so much potential. Then, something changes. You see her little girl start to struggle to hold objects, she may lose her ability to walk, and she starts to have seizures. No longer do you hear her say "mama", or "dada".

This is the story of countless little girls; little girls affected by Rett Syndrome. These beautiful little angels, of every race and nationality, are healthy at birth, but then regress at anywhere from 6-18 months.

Please vote this popular at the bottom of this post, so more people can see it!

Rett Syndrome is caused by a mutation in the MeCP2 in the X chromosome. It is completely random, and can strike any family. It affects far more girls than boys. The girls are often left severely disabled, and have a wide array of medical problems.

Amazingly, since they have found the gene that causes RS ( several of them, actually), they have reversed symptoms in mice. It is this hope that keeps us going.

Please take a few minutes of your time and watch one, or both of these short videos about Rett Syndrome. The first is an awareness video that explains the disorder, and the second, is my daughter's story.

Please help us raise awareness, and give hope for a cure in the future.

http://www.youtube.com/watch?v=7S2k2QTMqm4

http://www.youtube.com/watch?v=-UPl22IOrSA

[KC33]

Oct. 13, 2009 at 3:16 PM

Your daughter is beautiful and your videos are touching and educational. Thanks for sharing

[diandradawn]

Oct. 13, 2009 at 3:24 PM

My six year old and I watched and cried. Ciara is beautiful and you can see her determination and spirit in her eyes. Thanks for spreading awareness.

[IsaQ]

Oct. 13, 2009 at 3:59 PM

My heart goes out to you. I will cry, pray and be happy your daughter has life with you.

[Fordmomma]

Oct. 13, 2009 at 4:19 PM

Very touching video thanks for informing me of this. Your baby is a gift and you are a good mom for getting the word out : )

[SlapMeHappy27]

Oct. 13, 2009 at 6:21 PM

She is beautiful. Her eyes seem to pierce the soul.Thank you for sharing her with us.

[kleea1969]

Oct. 13, 2009 at 6:37 PM

Thank you for sharing, and helping to educate with this post.  Your daughter is beautiful.

[MommyofAddison]

Oct. 13, 2009 at 10:43 PM

Your daughter is beautiful. Thanks for sharing her story.

[kk_bella]

Oct. 14, 2009 at 10:00 AM

Cym, are those recent pics? She looks so much bigger and still just as beautiful! Voted popular, as always!

[Cymbeline]

Oct. 14, 2009 at 11:09 AM

Some of the pics are fairly recent. I'll have to get even more of her soon.

Thank you, ladies. :)

(Original Poster)

[surfarosa25]

Oct. 14, 2009 at 4:10 PM

God bless you & your daughter. Thanks for sharing her story!