-
We are scheduled. :(
- Oct 28, 2009 at 6:36 PM
- By
- Comments (35) Total Views (1219) Everyone can see this journal post.
Just got the call. It's official. We are on the books for Elijah's next two massive brain surgeries.
The first one will happen on January 7th. They will open up the left half of his skull and sew grids and strips of electrodes to his brain tissue. They will also drill holes in the right side of his skull and place strips there. It is dangerous and delicate surgery, and then he will be brought to the PICU until he is stable, at which point they will take all the wires coming directly from on and in his brain and hook them up to an EEG. He will spend a week like that. With his skull resting lightly on the wires, at a 45 degree angle, in pain... and then hopefully they will have determined a specific part of his brain that is where the seizures are starting, and hopefully it is a part that he can lose without losing too much function... And they will go in again on January 14th to carefully remove the electrodes, and if we are lucky, the seizure center.
If it doesn't require a 3rd operation, and if there are no complications we could be out of the hospital in 2-3 weeks. Recovery last time was 6-8 weeks, and then about 3 months of rehab... could be more or less this time. I don't know...
The next 2 months of waiting are going to be torture. I was so hoping he would be recovering by Christmas again this time, (like he was 4 years ago when he had his first 2 brain surgeries)... But I will try my hardest to set this aside, and not let the looming surgery and constant seizures that he is having right now ruin his holiday season. I'm glad that he wont be in pain or in the hospital on Christmas, so that is a good part of having to wait a little.
We meet the neurosurgeon again on November 18th to hear the details of the conference they had about his case and kind of give our final go ahead... and now there is nothing else to do except live in the moment. Every single moment between now and January. And I'm going to do my damndest to try.
(Though, as is my style and my deal with myself, I will give myself tonight after the kids are in bed to freak out. I will cry and curse and be haunted by images of him all bald and covered in staples. I will take a hot bath and really sob... And then I will put that away and wake up tomorrow ready to be the best mommy I can be. The Mommy my kids deserve.)
Four years ago...
Here we go again.... *sobs*
Comments:
I'm so sorry your family has to go through this, but I will pray that he will be healed and live a long and healthy life.
Poor little one. I'm sorry and hope all goes well.
Big HUGS, and prayers!!!!! Just take it one day at a time, one hour at a time, one minute at a time if you have too. When things get rough, just tell yourself "I will make it through the next minute." Then when you do, you will have accomplished something. Sometimes, looking too far into the future is scary, and sometimes it helps to get through right now instead!
AAAWWW Honey I am so sorry your little guy has to go through that again i will be thinking good thoughts for him and you and Matt and hoping for the best Good luck
Big hugs and prayers and positive everything being sent your way as always.
OH mama! What can anybody do or say...you will just have to put that one foot in front of the next, as best you can.
Keeping you and your son in my thoughts.
I am so sorry. I will continue to pray for you, Elijah and your family. Please come by and visit me anytime you want/need to talk..
*HUGS*
Your post brought tears to my eyes. You seem like a very strong woman. You have a great attitude about how you are going to wake up tomorrow.
Poor boy. :( prayers are being said for that precious boy
Already a member? Click here to log in
Meet MrsP523
This Maryland mom of three - a hospice social worker – loves her home state’s abundant seafood and is a HUGE fan of Kimora Lee Simmons.
Oh i am so sorry!! ((HUGS))
- jennyjlj
Message Friend Invite