Neuro Feedback Treatment Update for Nov 7, 2009

[MrsManners]

I have officially finished my third full week of Neuro feedback treatment for my Fibromyalgia.  They say that I am doing really well with the treatments and moving along at a pretty rapid pace which is great news because it is super expensive to do. I wanted to start keeping a journal of how I was feeling to go along with the video documentary that we are making of the experience. Some of this is just basic fibromyalgia symptoms and some of it may be from the changes that my brain is experiencing at such a rapid pace.  Hard to say at this point, but right now, my pain levels are high and the pain is radiating through out my entire body.  Headaches, neck, shoulders, right jaw, back from top to bottom, hips, legs and even some in my arms.  I am starting to show some signs of wear and tear emotionally.  I think this is from the treatment though and is only compounded by the fibro or vice versa LOL.

I have been having a really hard time keeping up with conversations, following along with what is happening around me, especially if there is more than two people talking at the same time.  Which in my house hold is a non stop occurance.  If someone is trying to talk business with me, I can't multi task very well and if we are trying to brain storm, my inability to retain information is getting in the way because I have to write it all down and am missing the next bit of info while I am writing down the last part.  This all leaves me feeling so much less than what I was, what I am accustomed to being. 

Before I was diagnosed with fibro, I was a strong, energetic and mentally fit woman.  I could juggle many tasks at one time and do it quite well.  Now, not so much.  Everything feels like a struggle.  Really this has just started to become a problem in the last few months but it really is taking a toll on me in ways I never imagined possible.  My hearing is like that of a dogs, it is so crazy, I can't tell if people are yelling all the time or if it's just me.  My sons toys make me want to cry they seem so loud. 

Hopefully as the weeks go on, the neuro feedback will begin to alleviate most of these symptoms.  Currently we have only been working on the part of my brain that helps with sleep.  I am even starting to wean off of my medications for that with great enthusiasm.  This is not a cure - but the hope is to get back about 80% of where I was pre-fibro and if that can happen, then maybe I can manage the rest with herbal supplements, diet and exercise.  I want my life back and I will get my way on this one. 

If you happened to have read this and you have Fibro too, know that there is hope, there are bad days, days when it's OK to cry and to be frustrated, but it is our drive and our desire to move forward and seek the next good day that will keep us going.  Our plight is to not give in or give up.  It is to try our best to be active in some way every day and to educate ourselves. It is to find the best support systems available to us and to lean on them.  If you are not happy with the support team you have in your Dr, find a new one until you are.  We need a good team all around us, family, friends and Dr.s alike. 

Thank you!

[NurseMaryB]

Nov. 13, 2009 at 5:34 AM

Angela, thank you for your honesty. I am sad that you are dealing with this. You are in my thoughts and prayers and I will help you in anyway that I can. You are a seeker with such a fighting spirit I know the solutions will manifest. I've been there in a different way. I got sick and tired of being sick and tired and little by the little the way was shown to me. It was like a lamp directing my steps. I couldn't see very far ahead but I could see the next step directly in front of me until I reached my measure of freedom. I am still in the process and on the journey. L&P Nurse Mary B