Update from my last post :)

[Elyssa414]

Sorry, I forgot how many of you are waiting anxiously with me... lol

So far I haven't seen any more definite seizures!! PHEW!!! He is home from school all this week, and I think I will start to feel better if I haven't seen any by next Monday! I would be feeling better already, but he is having seizure-y "times" throughout the day, where he is spacey and drooley, and throwing tantrums... Not the bright-eyed happy guy he is when he's seizure-free... So I'm still kind of sitting on the edge of my seat waiting for the other shoe to drop.

He's also had a harder time dealing with his vision loss suddenly. He was really doing great compensating for it, but this weekend, he just keeps running into things and getting disoriented. I'm back to pointing out curbs and signs and steering him through doorjams, (because he can't see anything to the right of what is directly in front of him since his last brain surgeries).

So, I'm not being able to talk myself into relaxing totally yet. A couple weeks ago, he was SO obviously seizure-free! "here" learning SO much, HAPPY, talkative, energetic and confident. Now, he's jsut acting a little "foggy" a litttle too often for me to be comfortable.

*shrugs*

I suppose if they are going to come back, like they always have in the past, there isn't a lot we can do about it. Either the surgery worked or it didn't, and after a lot of soul searching this week, I know that we wont likely put him through any more painful or torturous treatments. We will probably switch meds around and all the normal seizure stuff... But I'm done seeing him in the hospital in excrutiating pain. This last set of brain surgeries were SO SO hard on him. He hurt more than any child should ever have to hurt... I wont do that to him again...

But, hey... Maybe all that soul searching is for not! Maybe they really will stay away this time! Maybe this is Elijah's turn! *tries tries TRIES* to think p[ositive!! :)

Thanks for asking! :)

[ms_mommy_sue]

Mar. 29, 2010 at 12:09 PM

I am praying and thinking positively for your family that those horrid things never come back to Your brave little Elijah

[peasntatersmom]

Mar. 29, 2010 at 4:58 PM

Hey!  Thanks for posting the update!  We all know how much you have going on, no apologies needed!  *HUGS*

I think that Elijah is a remarkable little boy with remarkable parents!  You all have endured what most of us cannot even imagine.  Waiting for the other shoe to drop after all that life has brought you is totally expected.  Keep thinking positive thoughts, stay strong and please know that you have many friends lifting your family up in prayer!!  God is Good  :)

Love N Hugs from us