How can you possibly describe to people how Fibromyalgia affects you. Some days I feel great, no pain , no sensitivity. Then other days I feel as if 1000 needles are sticking into my skin. I can't be touched, not by my husband, not by my son. Even air moving on my skin hurts, clothes hurt, breathing hurts. Millions of people suffer from Fibromyalgia and chronic disease and to look at them you would think there is nothing wrong with them. Some days there is nothing, some days we can barely walk. There is no rhyme or reason to chronic disease, it just is.
Unbelievably there are still actually doctors out there that don't believe in Fibromyalgia. They have drugs for it, the FDA approved medication to treat it, yet recently I was told that it didn't exist. This was by a reputable, learned specialist in the orthopedic field. When someone doubts the existence of a disease that strips you of your dignity, family, your very thought process, they are basically telling you that you're faking it. Ask anyone who suffers from Fibromyalgia how it feels to not be able to remember what you did that day, where does the ice cream go...cabinet or dryer? Not just forgetting someone's name, forgetting words, thoughts, how to do something. This is not Alzheimer's it's a Fibro fog. Some days I am an intelligent person who can handle myjob, bank account, getting my son to basketball. Some days I forget to cook, forget how to do my job, forget how to spell words.
Fibromyalgia strips you of your feelings that you matter, it robs you of memories that you can't remember or share. It robs me of hugs, kisses and cuddling because it hurts to touch me. It makes me depressed, angry, frustrated and makes me cry.
You can't always see chronic disease because it is a silent, painful disease. It makes you tired, depressed, hurt, fearful and angry. Try to be kind and understanding when someone tells you about their illness. You may not be able to physically see the affects of that disease, so much damage is done to us emotionally when you are in pain all the time. As we say in Fibro...Gentle hugs
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