My boy was born november 2nd. The day we got discharged his dr told me that she had he echo results back (after hearing a murmur in his heart she ordered one). She said unfortunately we need to go to a cardiologist an hour away wednesday. My son has a large space inbetween the two chambers. I know some they wait to see if it closes, but she said it was big enough and they seemed very concerned. I am soo scared right now. I keep researching it over and over. He is not showing any symptoms associated with the large murmurs. He's not breathing overly fast (or atleast I dont think he is...hes little he breathes fast anyway), He doesn't stress when he eats. No sweating or panting or anything like that...

Idk I start to second guess it all. I am just worried sick and I've been just trying to relax with him. We got to go home friday and heard the news friday night...so I have to sit here until wednesday. I cant seem to put him down. she really made it sound like a huge concern but said since hes not showing any symptoms, he should be fine until his appt.

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Lb128f
Nov. 8, 2010 at 8:16 AM

I'm sorry you are stressing over this...but, I can understand why. You've probably already seen this...http://www.nlm.nih.gov/medlineplus/ency/article/001099.htm  You know....it says on this web site...this condition is always present at birth. And...surgery for a VSD with no symptoms is controversial. This should be carefully discussed with your health care provider.

I think you should look at it this way....if it were of immediate MEDICAL importance...the Doc would NOT have you wait. It is something that EVERY Baby is born with...the Doc is probably just being safe -- and maybe just sending another Doc "friend" a referral (it's done a lot)...if you are NOT seeing ANY signs of there being a problem...I'd try and relax about it (as much as you can)...and think the BEST case...NOT the worst case, you know? I bet he is going to be just fine and that the Doc will want to take a "wait and see" approach! I'll be saying a prayer! Let us know, okay?

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Lb128f
Nov. 8, 2010 at 8:20 AM

Do all VSDs cause health problems?
No. Many children are born with small VSDs that close on their own. In addition, many children and adults have small VSDs which do not affect their heart’s pressure or function. Instead of closing these VSDs, doctors may monitor the heart to make sure that intervention does not become necessary.

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Lb128f
Nov. 8, 2010 at 8:22 AM

More info...

VSDs range in size from small to large.

  • Small VSDs usually allow only a small amount of blood flow between the ventricles. Because of this, they are sometimes called restrictive. Most small VSDs:
    • Do not cause symptoms in infants and children
    • Close on their own, often by school age
    • Rarely need surgery or other procedures to close the defect
  • Moderate (or medium-sized) VSDs are less likely than small defects to close on their own. They may require surgery to close and may cause symptoms during infancy and childhood.
  • Large VSDs allow a large amount of blood to flow from the left ventricle to the right ventricle and are sometimes called nonrestrictive. A large VSD is less likely to close completely on its own, but it may get smaller. A large VSD can cause more symptoms in infants and children, and surgery is usually needed to close it.

VSDs are found in different parts of the septum.

  • Membranous VSDs are located near the heart valves. They can close at any time if a ventricular septal aneurysm is present.
  • Muscular VSDs are found in the lower part of the septum. They are surrounded by muscle, and most close on their own during early childhood.
  • Inlet VSDs are located close to where blood enters the heart. They are less common than membranous and muscular VSDs.
  • Outlet VSDs are found in the part of the ventricle where the blood leaves the heart. This is the rarest type of VSD.

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Lb128f
Nov. 8, 2010 at 8:28 AM

Try not to stress until you see the Doc....

A baby with a moderate or large VSD can develop congestive heart failure. These symptoms usually appear during the baby's first 2 months of life. http://www.medic8.com/heart-disorders/ventricular-septal-defect.htm

BTW: If the Doc wants to do the "Cardiac catheterization " (listed here) it doesn't have to be done...a 64 slice CTScan will give the Doc the same results without doing anything invasive.

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Stickmom
Nov. 8, 2010 at 12:55 PM

bumpand saying a prayer!

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kfroz...
Nov. 8, 2010 at 2:14 PM

My friend's daughter had a SEVERE VSD and she is the goofiest little 7 yr old around. She does karate, dances, runs around like a maniac. She even had to have the surgery to fix it. BUT she showed signs of something being wrong which is why it was caught in the first place and they were not given an appt. to wait for they went from the peds office to a pediatric cardiologist in the same hour.

Chances are your doctor is wanting to be on the "safe side" and that is why you are being referred.

Try to stay calm (I know it has to feel impossible). Saying prayers for you and your baby. :)

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Saya
Nov. 8, 2010 at 4:17 PM

My daughter had one as well.  Scared the living piss out of us.  We went to the cardiologist, they did an echo, and said it was small and would probably close on it's own.  It did.  at 6 months, it was closed.  He said we'd never have to come back again.  This hole is there in all babies, but for some reason, in some it doesn't close before birth.  If you have one child with it, you have a 10% chance of having another child with it.  

Did they say how big the hole was?  My dd's was 2mm.

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knagsmom
Nov. 8, 2010 at 5:43 PM

i know that this is very scray for you and im so sorry. my daughter was born oct 13th 08 and in the hospital i noticed she would stop breathing. so i told the peds doc and the one at the hospital said oh its nothing went to her own doc and she ended up on a heart monitor/apenea monitor till she was 1 yr i didnt sleep for the first 3 months with out someone there to be awake for her. i hope that ur sons VSD doesnt need surgery

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6girl...
Nov. 8, 2010 at 9:09 PM

The first thing you need to do is to take care of you.  The first few days after learning about something like this are very difficult, and if you don't make sure you're eating and resting as much as you should, it will be hard to take the moments as they come.

It may sound silly, but as a mom who has dealt with some pretty heavy issues with her little heart baby, I know that this is a very emotional and overwhelming time.

VSD has many different degrees.  The best thing I can tell you is that there is hope.  There are support groups, and loving, caring people willing to help, listen, and pray.

I have a soft spot in my heart for families who have little ones with CHD's.  My heart goes out to you, and if you need anything, feel free to let me know.  I don't have to have details unless you want to share them.

I will keep you and your little one in my thoughts and prayers.  Love and hugs to you.

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livin...
Nov. 9, 2010 at 1:06 AM

My son has VDS and it wasn't found until he was 5 weeks old. We were referred to a speciality clinic, and turns out, everything is ok. They will have to keep an eye on it, and whenever he gets a cold you can really hear his murmur. Im sure it will be fine mama! Hang in there and don't stress to much

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