My youngest daughter was born with HLHS. Basically the left side of her heart didn't form. She only has the right side of her heart that has been reconstructed by 3 open heart surgeries. I've kept an online journal through carepages.com since I found out at my 20 week ultra sound when I was pregnant with Allison. Feel free to go read her story at http://www.carepages.com/carepages/AllisonPatton/updates.
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