It's hard for me to put into words what I think about my 10y old sons diagnosis. I've been told he's on the spectrum but his school says he's fine. My husband thinks he just needs more discipline.  Then there is this other diagnosis lurking in the wings. Bipolar... The Nurse Practitioner at his psychiatrists office says she thinks he has this along with ADHD and PDD NOS, due to the aggression. I feel like no one really knows whats the matter and all I want is for someone to quit pulling abbreviations out of a hat and tell me how to best deal with him.  I tried a new councelor for him and one of the first things she told me was that she did not think he was on the specturm because he didn't have a speech delay or any other delay.  Infact, he was a pretty normal kid. My very adult 3 yr old who was a sweetheart as long as he didn't play with other kids. Then there was tantrums, normal right?. But he never babbled or cooed. Any way, make a long story short, the things i notice as "different" about hime are his sensory issues,  Functions on "his time" with no regard to the time frame the rest of the world functions on.  He doesn't transition well to sudden stopping of an activity and can get very argumentative if forced to do so....And why do I need a diagnosis?  Why can't I just take him to a councelor and be satisfied with the help they provide... Because I deep down feel like he does have PDD NOS or Aspergers as the psychiatrist called it.   Because I dealt with his tantrums at 2 and 3 over getting him dressed, keeping socks on him,finding shoes he would tolerate, over food he would eat. It killed me when i had to leave him at 18mths to go to California for a week to pick up my stepkids. When i came back he looked at me like i was a stranger, didn't want anything to do with me.  As for the Bipolar issue. He could have it. There are a lot of emotional issues on my husbands side of the family, suicide, alcoholism, etc.  I guess my rambling is allowing to get all of this off my chest because there is no one who i can really express my insecurities to regarding this. Maybe the aloneness i feel is subjective and not actual. But it's how i feel at the moment.  (and tonight I'm feeling quite introspective as i type on the computer and the very child i talk about sits next to me on the couch, not a bit sleepy, and doing homework he "forgot" and suddenly located.  A possible manic or upward shift in mood, yes. )  I love this quirky kid!

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Apr. 5, 2011 at 11:20 PM

awhh, i'm really sorry to hear that,.

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Apr. 6, 2011 at 12:12 AM

I have to say the docs don't know everything. I was diagnosed with Aspergers, bipoler, and ODD at the age of 13. I am now 23 and I am perfectly normal. They had me on all these drugs and the drugs MADE me crazy. Up until I stoped taking them at the age of 19. Now I am a normal stay at home mom with three wonderful kids and if you were to talk to me you would think I was just a sain as the next person. Just becarful about what they give him if you are looking in to drugs and for the aspergers look for sgins such as no eye contact when you are holding a conversation. If he has to look away when talking to you for a long time or if he looks at you breefly but soon has to look away that is a sgin. Also read up on what they are talking about a lot of docs throw these words at you and then throw pills at the kid like it is going to fix it and they get paid for proscribing the drug to you. Be informed about the things they are saying your son has before they try to give you pills. Some of the pills for the things they say he has are dangerous and could cause lots of problems that sometimes last long term. Some children have do have these things but I know first hand that sometimes they are wrong and can cause damage that can not be repaired. The best thing to do is to be informed and make the best decision based on what you read and what you see in him. Look up all the the things the doc says he has and decide where to go from there.

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Apr. 6, 2011 at 4:45 AM

Do not medicate.....PDD-NOS can be managed with intensive therapies. Drs and the schools just want to medicate kids to make their lives (the teachers) easier. Yeah that is not your son's job nor is it yours. Speak to doctors about non medicated therapy routes too. Explore all options extensively but remember it is not your job to make the teachers' lives easier. They are there for your son to teach him. If they cant handle it then they need a new career.

Much hugs.

FYI I have a severely autistic daughter who was diagnosised at 3 as PDD-NOS but she regressed so severely she is classic non verbal autism. Six months after she learned to talk she regressed to the mental abilities of a 18 month old.

The only way to calm yourself is to breathe and ask questions. Write them down and know you are your son's not let others push you around, give you the run around or just hedge your concerns. Get tough and get him formerly evaled by a developmental pedi. ASAP!

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Apr. 6, 2011 at 6:29 AM NOS is frustrating cuz to me its saying "there's other things wrong but we have no idea what!" If your son is in public school DEMAND they do a thorough eval asap..sometimes it can take 9 months to complete. You are NOT local hospitals crisis units and they can give you info on parent support meetings

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Apr. 6, 2011 at 9:13 PM

Thank you all! It's nice to know i'm not alone. I have to say the medication issue is a big one for me.  I will definitley explore and question more and not just take what the "professionals" say.  It's just easy to want to conform to what everyone else says kids should be like. I will try to stay strong and believe in my son.


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