My son is 14. He was almost 4 when he was diagnosed with autism - moderate autism. 

A little background....

When he was 2, he wasn't talking. He grunted, he jumped, he pointed, and maybe had 20 words. 

Many people told me "oh he's fine he'll talk when he's ready" I on the other hand, taking the advice of a childcare worker, sought screening/help through an Early Intervention program in Northern Illinois. 

We found out right after his 2nd birthday that he was significantly delayed in speech and developmental milestones. He started at an Easter Seals program 4 days a week for 3 hours a day. It was like a preschool setting with private speech. No-one mentioned autism at that point, but it was obvious there was something more than just speech. 

He started talking through intervention and the dedication of the people at the Easter Seals center in Northern IL. But something was still missing. 

I was pursuing a degree so we moved to a different area in IL and the university had awesome programs for children. He was 3 at this point. And while he was talking more, and communicating better, there was still a significant delay. 

Following a fire in our apartment building, I had more confirmation. Kyle started obsessing on fire -and everything related to it. It consumed his life. More than just an average post traumatic stress issue. He would repeat phrases from movies about fireman - not making sense except to himself and to me who had watched the movie 100 times over. I waited a little while to see if this would "pass" but it didn't. He was still getting speech at this point, and in an awesome Early Intervention program. They recommended I get him screened for autism. He was almost 4. I thought "what's autism?" and ok now I know so "but he's talking" 

I got the screening at the NIU psychology services, and he was dx with moderate autism. He was still significantly delayed in speech - broken sentences, not able to have a reciprocal conversation, etc. etc. 

I didn't agree with "moderate" but you know how the "numbers"  and scales matter on tests. 

Here's the difference that I experienced. No-one told me he would never make it. No-one told me to write him off. Everyone in these programs in Northern Illinois (Early Childhood and EI) encouraged me to get him help. They all believed in HIM and believed in the potential of CHILDREN WITH AUTISM. 

I did not go through mourning. I did not feel a loss. 

I WAS RELIEVED!!!!!  I knew something was "different" besides speech, but I didn't know what it was!!! Now that I had this diagnosis, I had a frame of reference. I started researching, I started reading, and I changed what I could. His Early Childhood program didn't need to change. They just had more information - although they had already kinda thought he was autistic. 

FF to present day. Kyle's 14. He never stops talking. He's almost obsessed with talking, LOL. He speaks in complete sentences. He carries on conversations. Is he still autistic? Oh heck yeah, he is. But everyday is an adventure. And everyday he does things that amaze me. Of course we have challenges, like right now he's mad at me because I said no to him taking something in his room that's mine. He has trouble processing the word NO, lol, and has trouble with his anger. 

He's an awesome kid who has an innate spiritual side. We didn't have to nurture it. He believes in God with true child-like faith. He prays often, and only listens to Christian music. When I've had a bad day, he tells me to turn the other cheek like Jesus would. 

I love this boy with all my heart. And while I wish he didn't have to struggle in some areas, I wouldn't change a thing about him. After all, God doesn't make mistakes. 



Add A Comment

Comments:

qwiet...
Apr. 10, 2011 at 3:24 PM

Inspiring :o)

Early intervention is the greatest blessing . . . God sent you to the right people. I was relieved when we got our diagnosis too, I celebrated it! Kyle sounds a lot like my son Matthew, he doesn't like music though, at ALL,  but he will recite the words to his favorite christian songs he's heard us playing. He's moral to a fault, even when his issues get the best of him and he 'loses it' or anger and frustration take its toll he always comes back through prayer, mine and his.

Both of my boys are just what God meant them to be . . . no mistakes :o)

~ Thank you for sharing this peice of your heart ~

 

Message Friend Invite

ZsMommy
Apr. 10, 2011 at 3:30 PM

I <3 Kyle!!!!! You know I do!!!

Wish we lived closer-since you know Kyle n Z,you and I are so alike.

I love this Lynn-Love it

Quote:

I love this boy with all my heart. And while I wish he didn't have to struggle in some areas, I wouldn't change a thing about him. After all, God doesn't make mistakes.

Message Friend Invite

Julie25
Apr. 10, 2011 at 4:59 PM

wow my son will be 12 and we think he has it too, he gets really mad when you tell him no

Message Friend Invite

loves...
Apr. 10, 2011 at 7:27 PM

wow that is good to know    i just found out that my daughter who is almost 22 has asperberg and i did not know what it was except it is a mild form of autism.  she is on a lds mission and now has to come home because she can not handle the everday things that missionarys do. i feel bad for her but still love her. i knew she was a little different form others but just thought it was her way of being herself (she has to have things a certin way or she gets mad.) We will have strugles when she gets home but we will work through them. 

Message Friend Invite

kyles...
Apr. 11, 2011 at 1:58 AM

Thanks to all! 

Message Friend Invite (Original Poster)

AmaliaD
Apr. 11, 2011 at 2:18 PM

i am on a different road... my son had a speech delay but never could qualify for therapy because he just scored too high by "just a few points" each of the 3 times i had him evaled - he also has many classic signs of aspies but being that i cannot get him even into speech - good luck with that right...   same issues - broken sentences - but they tell me - it is normal for a 5 yr old boy --- where did you learn how to get the early programs - because my pedi/  my family doc/  and his preschool /  his k screening - are all dead ends for me!

Message Friend Invite

ohioa...
Apr. 11, 2011 at 10:33 PM

awesome post i too have a moderate autistic son he is 8

Message Friend Invite

kyles...
Apr. 12, 2011 at 2:35 AM

AmailaD do you have an Easter Seals near you? How old is he?

Message Friend Invite (Original Poster)

Want to leave a comment and join the discussion?

Sign up for CafeMom!

Already a member? Click here to log in