My Health is Rapidly Declining

[reach4thestars]

Hellooooooooo.

I want to apologize for being MIA again. This time for a different reason. This time due to my health. 

I have dealt with my migraines since I was 14 years old. The Doctors could never explain them; they just happened. So flash forward to a few months ago. I was noticing changes in my speech. I would insert a word into sentences that was the opposite of what I meant. For examples "Go to the kitchen and go in the washer and get your sister a drink." Weird things like that. Then my migraines were getting more intense. I would have severe stabbing pain in my left temple which would be followed by the left side of my face to go numb. I am glad the numbness goes away rather quickly because trying to eat with half your face numb is frustrating. 

I was also noticing that if I stood for more than 3 minutes I would get very lightheaded. I can't go anywhere unless someone is with me. Medically, I shouldn't be able to drive because my thinking is so garbled.

So I finally go to the Doctor because the numbness of my face scared the crap out of me. I thought that I was having mini strokes. She orders a CT scan of my brain. Waiting for the results was scary because it seemed like a month when it was only 2 days. 

My results come back and I am told that I have a brain AVM. She says they want to do a MRI to determine if it is new or if I was born with it because 99% of the time you're born with it, you just don't develop symptoms of it until you are in your twenties, thirties or forties.

So I had the MRI which by the way, for someone who has migraines, they need to find a quieter way to do a MRI. Talk about loud!

Two days ago I got the results that I was born with the brain AVM and since I am still having symptoms now I need to see a neurologist to see how they want to deal with it; brain surgery, embolization or radiation. 

I am scared and nervous and stressed.

I am hoping to get on here more often, but quite frankly I am not sure if I can because it took me over an hour to right this post; that is how unfocused I am right now.

[daye62]

Jun. 20, 2011 at 4:01 PM

I am dealing with similar issues as you.Not the same disease/disorder but the same complications with the muddled thinking,inability to use words properly at times,getting lost in familiar places.Mine is the complication of another disease process which is all I can handle and now: 2 abnormal mammograms and a family history of breast cancer.I feel your frustration.I will keep you in my prayers.