If it has been discovered that your baby has a birth defect you need to armor yourself with information. Learn everything you can about the birth defect and reach out to others for support when you need to.

There is a National Birth Defect Registry that collects data through an on-line portal about the many types of birth defects.  This registry is sponsored by Birth Defect Research for Children, a non-profit supported by public donations and grants. The information you provide in the questionnaire is confidential and no personal identifying information will be provided to anyone without your permission. It also allows you, if you choose, to be added to a parent matching list that matches parents dealing with children suffering from the same birth defects.



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