terrified

[cowgirlupgrl]

Well here it goes.....My son is 10 months old now and trying to walk and is falling down. Just the other day he decided to go into the kitchen which he knows is a no no and he fell and busted his gums open. I do not know if most of yall know but my son has Hemophilia and that is where his blood doesnt clot as easily as ours does.  Well it took at least 1 1/2 hours to get the bleeding to stop.  Now I am terrified because I dont know what to expect in the future. I feel bad too cuz when something happens to my son I yell at my husband to go call the nurse. It makes me feel bad cuz I never want to yell at him even if i am scared.  I need some advice.

[tessasmom]

Jun. 8, 2007 at 12:16 AM I would put gates up to keep him out of the kitchen and its hard hard floor.

[clnease]

Aug. 26, 2007 at 12:50 PM

That's what we had to do-- our whole house is a "gated community".  Both of our twins have Severe Hemophilia.  Did you give him popsicles to help stop the bleeding?
my guys are 21 months old now- we have been through a LOT and are still learning- but it is possible to survive the baby days!

ttfn

Carri

[fulqvr]

Sep. 6, 2007 at 3:31 AM Really, you just need to know, these things are going to happen, and it's not your fault. It's not Daddy's fault. It just is. Always remain calm. No one died within 5 min. of an injury just because of hemophilia. So, stay calm, comfort your baby, and then asses the situation. Get some "boo boo bears" and keep them in the freezer. I know this feels like the world right now, but pretty soon, it will actually take a back seat to life. There will even be some days that you forget all about the hemophilia (sometimes more than one day, as I'm sitting here thinking I'm 2 days late for prophy...yikes). Starting prophy is another scary stage, but you'll come to it, get through it, and look back and think, that wasnt so bad. No on expects to have a less than perfect child. I think it's even harder when you can't see the imperfection. But then, sometimes you can, in the form of big ugly bruises. And people look at you funny when they see them. And you just smile and move on. That's just the way it is. But you'll be fine. And he'll be fine. And you'll find other things to worry about later. Such is the life of a parent.

[augustbaby2008]

Jun. 16, 2010 at 9:32 AM

Hi, Im new to the cafe mom group but I saw you on the hemophilia group page. My son has hemophilia a, severe and I can relate to this story to the T. Although, my husband is more of the nervous and Im more of the lets get it fixed. My son was running back and forth in the kitchen (I never blocked any room from him, which I probably should have!) and he tripped and split his lip and cut the sin that holds the top lip to the gum. Blood was every where! I have a few tips for you that I learned from our awesome nurses! If bleeding doesn't stop with pressure, ice pops! If that doesn't work, a natural way to stop the bleeding (this is what I used) Tea Bags! Wet a tea bag and apply it to the lip or gum. There is something in it that stops the bleeding. Sounds weird, but it has worked for me numerous time.