Introduction

[momrunner]

Hi-

My name is Rhonda and I have three children.  One is 20, one is almost 18 and then there's my daughter, who is 7.  My youngest has been through so very much in such a short lifetime.  Now we're at a crossroad....she has been diagnosed with Sensory Integration and they're going to test for Aspergers, or possibly mild Autism.  I am a social worker and have worked for over 15 years in the field.  Recently, I worked for 5 years with children in foster care with therapeautic needs.  All the while, I knew something "wasn't right" with Jillian, but I didn't see the signs.  Now, they've become glaringly clear and although it's not what someone would want for their child, I'm relieved to get answers.  I battled the insurance game and was given disability insurance, which will cover the many pieces of equipment and OT that she needs.  Now I'm battling the school for services, which have been denied twice.  Testing has also been denied.  We recently had a screen for dyslexia done, which constituted testing for this.  I have asked the school for this and we meet this coming Tuesday to see if they will do the testing.  Keep your fingers crossed!  I look forward to having a support system.  So many people do not understand any of the disorders that fall under Autism.  I, myself, and still learning.....

[LauraP67]

Feb. 15, 2007 at 9:25 PM Hi Rhonda, Welcome to Cafemom.  I hope you are able to get the help that you need for your daughter.

[momof2aspies]

Mar. 1, 2007 at 12:10 PM have a great day

[CDaley07]

Mar. 16, 2007 at 11:48 PM Welcome Rhonda. I understand your fustration. It is difficult in all directions. I also do understand the weird relief when you get an answer to that unkown question. Even though the answer was not always a good one at least you knew where to look for help and support. I don't go in circles with mine.....I SPIN!

[Crazy4dragons1]

Dec. 7, 2007 at 10:47 AM

Rhonda, I know how frustrating and hard it can be fighting the system to get what your child needs.  Hang in there mama!  Maybe we can help each other!  I've fought for over 2 years to get proper diagnostics done and now for his needs to be met both medically and at school.  I'm lucky, though, in that I have 3 other parents of my child who share these responsiblities!  Call me sometime and we will definately talk.

 

Jess 

[babyducklinda]

Dec. 27, 2007 at 4:13 PM Hi Rhonda. I hope you get all the help you need to make life easier for you and your daughter. My thoughts are with you and I wish you the best.