First off I want to apologize for not writing this update sooner....Jaxon was born Dec. 31 at 8:27 am 5 weeks early and did amazing his first day in this world. The second day was not as easy for him....he was working way too hard to breathe and was breathing way too fast so they intabated him and flew him in a helicoptor to Spokane, Washington. My husband came up with him and I had to stay behind because I had surgery the day before. He has been on a ventilator for past three weeks because of his breathing trouble. First he wasn't getting enough blood flow to his lungs and now he's getting too much due to a hole in his heart. They have tried medicine to help with his heart but it doesn't seem to be working. He is scheduled for heart surgery next week. He is feeding well through a feeding tube and is almost breathing room air. We breathe 21% oxygen in our air and he is on 27% now which is wonderful considering last week he was still on 100%. He doesn't have spina bifida which is so good considering all the doctors told us he did. He does have Heme Vertebres which means they are extra vertebres only on one side of his spine which will have to be corrected with surgery when he's weight bearing. Please keep him in your prayers during his surgery and the rest of our long difficult hospital stay!!! Thank you so much!