I am contemplating backing Alec out of school a bit. His school hasn't maintained his ability to stand at the walker he is regressing in his skills. I can't work well with him after 7 plus hours of school because he is so exhausted he sleeps most of the time at home. I am going to push hard this coming IEP to get more services because this is ridiculous, he should not be regressing. I thought school was suppose to help him not do his development harm. If I can't win the fight I am going to have to pull him out because he was doing better and progressing under my care. Yes he got more therapy under early intervention but not significantly more he should have at least maintained skills. I just have this horrible suspicion they are warehousing him because he is in a wheelchair. What on Earth are they doing with him all day? His school therapy goal is to take two or three steps. I don't get how they are working towards this if he can barely stand at a pediatric walker any more. Before we sent him to school he could maintain a standing position at the walker for 2 minutes now he can barely hold it for 10 seconds. These were the pictures taken before he started with the public schools pre-k.

Add A Comment


Feb. 1, 2008 at 9:09 PM How old is he?  I would have to say, that if you feel like he is going backwards you need to ask for an emergency IEP meeting and get his hours increased

Message Friend Invite

Feb. 2, 2008 at 1:06 AM

First of all I want to say what a cutie your son is....second my son just didnt seem to get the services from school either, he was supposed to get alot of speech therapy but they didnt want to provide them.  You should be able to see a chart of like when the PT or whatever has signed she came to work with him...im not sure about them either...but ask atleast.  Im homeschooling my son now but mostly because of all his illnesses.

Take care,


Message Friend Invite

Feb. 8, 2008 at 1:37 PM

snail teacher - He is 3.  Our IEP and evals are coming up soon soon.   No point calling a meeting because we still need to do the evaluations and they start next week actually. 

Cathy - Yeah school system sucks.    He isn't getting enough pt for someone as involved physically.  He is too low toned and even a little slacking off leads to a back slide.  Are you still getting some therapy through the district even though he isn't attending school?  

Message Friend Invite (Original Poster)

Want to leave a comment and join the discussion?

Sign up for CafeMom!

Already a member? Click here to log in