Another Update

[mommy030507]

So we went back to the Shriner's Hospital in Chicago to see about getting her palate surgery done. Well We didn't get the news we wanted to hear. They told me since she still has breathing problems, they can't do the surgery. So I was bummed about that. She told me to have the pedi order a sleep study test to determine how often she stops breathing at night. So we should be having that done here in March. So we go back to Chicago in April to see if they will approve her for surgery again. If yes, then surgery should be in June.

I'm so bummbed that she won't be having her palate surgery done soon. She's about to be 1 year old(March 5th), but won't be able to enjoy a lot of her cake :( Plus all the toys I want to get her, she won't be able to play with. She's 5 months behind developmentally. So she doesn't crawl, stand up, walk, or roll side to side. So that puts a crunch on presents.

 

So last night I had the scare of a lifetime.

So doctors have been telling me that my dd could die at any time without warning(my profile explains that). I took them seriously but I never thought it would happen. I was sitting at the computer on here and dd was in her playpin at the other side of the room. I heard her playing for a while, but then I didn't hear anything. So I look over, and I see dd in a weird position. Her head was slumped to the side, her body was in a sitting postion, and it just looked horrible. I yelled her name, but no response. I yelled louder, but nothing. So I went over to her and she wasn't breathing. I freaked out. So I pick her up and her body was limp and she wouldn't move at all. It was like holding a bag of rocks. So I thought in my head "Oh no I can't believe this happened". So I turned her over and after a few seconds, she let out a big breath and started crying. Never in my life have I been so glad to hear her cry. I've never been so scared in my life.

[jenn35160]

Feb. 13, 2008 at 12:21 PM i am so sorry to hear that that had to have been so scary i would have freak out i am glad that u got her back to breathing keep me informed on how she is doing

[battlecat]

Feb. 13, 2008 at 12:39 PM Karma did that to me once too.she was much younger though. do they have you position her on her belly to sleep? Is she on an apnea monitor? Karma had a pulsar oximeter for over a year. we also were told to keep her on her belly so her tongue would flop forward and not block off the airway. Karma also had a sleep study done but it wasnt very much help. they attach a ton of wires to them and then expect them to sleep. I just dont think it works well. Are they going to do a jaw distraction? The doctors took out karma's tonsils to make her airway bigger and her apnea got sooo much better. best of luck to you. let me know if you have any questions.

[mom2ljh]

Feb. 13, 2008 at 12:59 PM That's SOOOOOOO scary.  I'm glad she's okay.  BIG HUGS!  I hope they can get her approved for surgery.

[sugarplumsmom]

Feb. 13, 2008 at 2:12 PM

I didn't see your earlier post.  I would have been soo scared too.  I am glad you are so attentive-you saved her life.  Don't worry about her being 5 months developmentally behind.  She is alive and that's all that matters.  She can enjoy cake and presents later :-)

I will be praying for you guys.  God will take care of her. 

[LiLMomma0060]

Feb. 15, 2008 at 4:22 PM I bet that was the scariest thing ever! i dunno how you do it girl you are very very very strong! If will all be okay.. you just gotta keep an eye on her at all times....... try not to worry yourself too much. Go to the pedi.. asap.

[amor41705]

Feb. 16, 2008 at 8:22 PM omg that is so scary! I hope God helps you through these rough times. Keep your head high and your heart full of faith. God will not abandon you. Stay strong momma!!

[MyMichelle23]

Feb. 21, 2008 at 10:58 PM I hope that everything goes well for you and your baby. I would have been so scared. I am so glad that she started breathing. You and your baby are in my prayers.

[HardtobeaMom]

Mar. 20, 2008 at 7:00 AM Wow I am so sorry hope she is feeling better

[erinmck12]

May. 14, 2008 at 5:27 PM Oh my gosh! My heart just sunk reading this. I'm so glad she is ok!! Please let us all know what we can do to help!